Utah mother of son with PKU works to get Medical Nutrition Equity Act passed

Twelve-year-old Owen Maxfield is thriving and he’s passionate about basketball. His life appears like that of a typical tween but did not come without his mother, Heidi Maxfield, fighting for his medical needs from the time he was born in 2007. KUTV. Owen has a rare genetic disorder calledPhenylketonuria (PKU). The disorder is an inborn error of metabolism that results in decreased metabolism of the amino acid phenylalanine.