Family Stories
Utah toddler one of first to receive groundbreaking gene replacement therapy
A Utah toddler is one of the first in the U.S. to receive a potentially groundbreaking therapy, and his father…
August 28, 2020
GAMT Deficiency Story: The Power of Newborn Screening
Witness the dramatic difference newborn screening can have for children with GAMT Deficiency in this family’s story of two children…
December 9, 2019
Utah mother of son with PKU works to get Medical Nutrition Equity Act passed
Twelve-year-old Owen Maxfield is thriving and he’s passionate about basketball. His life appears like that of a typical tween but…
December 4, 2019
“Owen’s Story of PKU Diagnosis” -Heidi
There are certain memories that are etched into my brain because they were life-changing. Our newborn child getting diagnosed with…
May 1, 2019
“Camden’s Story” -Amy Jo
I gave birth to my first child In May 2013. The pregnancy and birth were both easy and normal with…
April 1, 2019
“Levi’s Story” -Laura
Levi was born in June of 2011. As far as we knew, a healthy and strong baby, making us the…
March 19, 2019
“Drake’s Story” -Seth & Rachel
Our son, Drake, was born during a routine c-section and there were no complications. He was healthy and doing great.…
March 1, 2019
“Trigg’s Story” -Trisha
My husband and I were married on Dec 12, 2012. We knew that as soon as we were married we…
February 1, 2019